Report on progress of the PROSTEP project

Report on progress of the PROSTEP project

Latest news on PROSTEP project (promoting self-management in chronic diseases) first meeting of platform of experts, Brussels December 1-2th 

Although the content of this European Commission tender is embargoed until after it is completed, we can share reports on the activities undertaken as they are defined in the tender specification of last year and therefore a matter of public record. EHFF is one of five organisations that constitute the steering group: EPF (European Patients Forum) who are the consortium leaders, DCHE (the Danish Committee for health education), FAD (Fundacion Avedis Donabedian, Barcelona), iMTA (a specialist group within Erasmus University) and EHFF.

Progress so far: We reported the launch of the PROSTEP project on Jan 27th in a round-up of European projects, new item 16th March, following the news item jan.9th that confirmed that our consortium had been awarded the tender (these items include reference to the tender specification). Since then the review of clinical effectiveness of self-management approaches, led by FAD was completed, in tandem with the review of cost-effectiveness, led by iMTA. EHFF submitted, on the basis of these results, the evidence that supported our advice on which chronic diseases should be chosen for further study, to seek the Commission’s approval. Following that process, EHFF has led the process to select candidates for the proposed Platform of Experts that would then tackle the five tasks defined in the tender specification, again subject to the Commission’s approval of the list of experts proposed.

First meeting of the Platform: On December 1st and 2nd EPF hosted a meeting in Brussels where 24 invited experts met to be fully briefed on the project, to meet each other and to plan work on the five tasks referred to above. The tasks are outlined in the tender specification, which is here.

To quote our submission to the Commission ‘The selection of people for the expert platform took into account the principle of cross-functional stakeholders (healthcare providers/professionals (from both secondary and primary care), patient groups, academics, industry, communication/health education, carers and payers) from a balanced geographical background who also have experience ‘on the ground’ rather than solely representing a stakeholder group at the policy level. The diversity in demonstrated expertise and geographical and stakeholder backgrounds will assure that a network commences that will be able to influence policy making on both the national level and in the different European regions. Needless to say, included in the selection were known high-level experts in the specific disease entities e.g. diabetes, COPD, cardiovascular disease etc.

Next steps: The work of the platform is expected to be completed in draft by May 2017, divided between five working groups but with regular communication between groups via the communication platform Bitrix24, managed by EPF.

Later in the year the project will be completed by a Conference to be held in Brussels, along the lines of that currently proposed for completion of the earlier tender PiSCE which is to be held on March 17, where EHFF also has a role on the project steering group.

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